Meet Caden, my incredible bonus son who has brought so much light into my life over the past (almost) 4 years. Despite facing the challenges of TUBB4A Leukodystrophy, a rare condition affecting the central nervous system, Caden embodies strength, patience, and resilience, teaching me invaluable lessons every day.

Diagnosed at just 1.5 years old, Caden is among 200 worldwide with this condition and the oldest of 13 with his specific variant. His journey with TUBB4A Leukodystrophy has inspired hope and determination in the face of adversity.

While there is currently no cure, ongoing efforts by groups like N-Lorem and Children's Hospital of Philadelphia (CHOPs) offer promise through ASO Treatment trials. These innovative clinical trials aim to modify RNA transcripts using antisense oligonucleotides (ASO's), potentially slowing or halting disease progression for genetic disorders like TUBB4A Leukodystrophy.

On May 3rd, we are participating in the Kinslow TUBB4A Foundation's first annual, Run 4 Hope, a 4-mile event where we will also be celebrating Caden's 12th birthday. Caden's Crew 4 Hope seeks to raise funds supporting families affected by TUBB4A-related leukodystrophy, driving critical research, family assistance, and awareness initiatives.

Your contribution, no matter the amount, can make a meaningful impact in advancing research, aiding families, and fostering awareness. Join us in this important cause by considering a donation towards Caden's journey and the Run 4 Hope event as we stand together in the fight against TUBB4A Leukodystrophy. 💪